steesh07 Posted June 3, 2016 Share Posted June 3, 2016 I know that there is a handful of older posters on this forum and just wanted to raise a bit of awareness about a disease that has affected my son recently. Mitochondrial Disease is the working diagnosis my 17 month old son has been given, he had a severe episode a couple of months ago and ended up in resuscitation at the local hospital and we hadn't had any idea what was happening or what caused it and if he would even survive. Me and his mum were shocked at how a perfectly healthy child could deteriorate so quickly and it baffled the doctors too. But after a lot of tests (MRI's, CT's, X rays etc) we were given the bleak diagnosis of; Mitochondrial Disease. To which we researched extensively and were emotional for days and weeks to come (we still are now). Taylor has been doing well recently (he lost his walking, eating and had severely heavy breathing) and has gotten back to being his usual self for now. But I would just like to try and raise awareness of the disease among you guys because it gives us hope that research and funding is made available for finding a cure. Local Paper: http://www.chroniclelive.co.uk/news/north-east-news/meet-newcastles-mystery-boy-who-11407647 Lilly Foundation: http://www.thelilyfoundation.org.uk/ Thanks to anyone who takes time to read this thread. Link to comment Share on other sites More sharing options...
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